Stres i dobrobit roditelja djece s poremećajem iz spektra autizma u doba pandemije bolesti uzrokovane virusom SARS-CoV-2

professional thesis

• Title (english): The stress and well-being of parents of children with autism spectrum disorders during changes caused by the SARS-CoV-2 virus
• Author: Ivana Nađ
• Mentor: Sanja Šimleša (mentor)
• Committee member: Ana Wagner Jakab (predsjednik povjerenstva)
• Committee member: Marina Milić Babić (član povjerenstva)
• Committee member: Sanja Šimleša (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2022-11-04, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Education/Rehabilitation Sciences

Abstract

Ograničavajući faktori u pristupu odgojno-obrazovnoj podršci, uslugama podrške, promjene u dnevnim rutinama, zabrinutost zbog povećanog rizika izloženosti bolesti COVID-19, poteškoće u pridržavanju epidemioloških mjera poput nošenja maski, održavanja socijalne distance, učestalog pranja ruku, mogu biti stresori za djecu s poremećajem iz spektra autizma a time i za njihove obitelji.
Cilj ovog istraživanja bio je utvrditi odnos sociodemografskih obilježja, obilježja težine izraženosti simptoma djece uslijed promjena nastalih zbog pandemije bolesti uzrokovane virusom SARS-CoV-2 te stresa i dobrobiti roditelja djece s poremećajem iz spektra autizma. Korišteni mjerni instrumenti bili su Upitnik sociodemografskih podataka, General Health Questionare 12 (Goldberg i Hillier, 1979) i Upitnik izvora i intenziteta roditeljskog stresa (UIIRS, Profaca i Arambašić, 2004). Rezultati su pokazali značajnu povezanost izraženosti simptoma poremećaja iz spektra autizma kod djece s doživljenim stupnjem stresa kod roditelja i negativnim utjecajem na emocionalnu dobrobit, dok kod načina primljene podrške ili izostanka iste nije utvrđena značajna razlika u intenzitetu stresa roditelja. Temeljem prikupljenih podataka dobili smo uvid u čimbenike koji su povezani sa stresom i dobrobiti roditelja djece s poremećajem iz spektra autizma te koji su važni za planiranje podrške za roditelje djece s poremećajem iz spektra autizma.

Abstract (english)

Limiting factors in access to educational support, support services, changes in daily routines, concerns about the increased risk of exposure to the COVID-19 virus, difficulties in adhering to epidemiological measures such as wearing masks, maintaining social distances, frequent hand washing, which can be stressful for children with autism spectrum disorders and thus also for their families.
The aim of this research was to determine the relationship between sociodemographic characteristics, severity of the symptoms in children due to changes caused by the SARS-CoV-2 virus pandemic and the stress and well-being of parents of children with autism spectrum disorders. The measuring instruments that were used are the Sociodemographic data questionnaire, General Health Questionnaire 12 (Goldberg and Hillier, 1979) and Questionnaire on sources and intensity of parental stress (UIIRS, Profaca and Arambašić, 2004). The results showed a significant correlation between the expression of ASD symptoms in children with the experienced level of stress in parents and the negative impact on emotional well-being, while no significant difference in the intensity of parental stress was found in the type of support recived or the absence of it. Based on the collected data, we gained insights into the factors that influence the stress levels and the well-being of parents of children with autism spectrum disorder, which are important for further planning the support systems for parents of children with autism spectrum disorders.

• Keywords: poremećaj iz spektra autizma; roditeljski stres; dobrobit; COVID-19
• Keywords (english): autism spectrum disorder; parental stress; well-being; COVID-19
• Language: croatian
• URN:NBN: urn:nbn:hr:158:860897
• Study programme: Title: Postgraduate specialist study Early Intervention in Educational Rehabilitation; Study programme type: university; Study level: postgraduate specialist; Academic / professional title: sveučilišni/a specijalist/ specijalistica rane intervencije u edukacijskoj rehabilitaciji (sveučilišni/a specijalist/ specijalistica rane intervencije u edukacijskoj rehabilitaciji)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2022-11-10 13:59:39