Iskustva majki djece s kroničnim bolestima bubrega o značaju učestalih hospitalizacija njihove djece

master's thesis

• Title (english): Experiences of mothers of children with chronic kidney diseases on the contribution of their children's frequent hospitalizations
• Author: Lucia Ćorić
• Mentor: Damir Miholić (mentor)
• Committee member: Damir Miholić (predsjednik povjerenstva)
• Committee member: Renata Martinec (član povjerenstva)
• Committee member: Ana-Marija Bohaček (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2022-07-05, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Education/Rehabilitation Sciences

Abstract

Hospitalizacije kod dječje populacije mogu predstavljati značajan stres i šok uz intenzivne osjećaje tuge, straha, ali i ljutnje zbog odvojenosti od obitelji i svakodnevnog okruženja. Ovisno o dobi, djeca različito reagiraju na ostanak u bolnici te općenito novonastalu situaciju vezanu za njihovo zdravstveno stanje. Neka djeca hospitalizaciju mogu doživjeti kao kaznu te razviti i osjećaj krivnje misleći da su svojim ponašanjem i postupcima tome pridonijeli. Upravo zbog svega navedenog, potrebne su mnoge preventivne mjere i prilagodbe na odjelima pedijatrije kako bi dijete imalo što kvalitetniji i ugodniji boravak u bolnici, koliko god je to moguće s obzirom na dijagnozu i stanje u kojem se nalazi.
Kronična bolest bubrega jest pojava koja označava postupni i nepovratni gubitak bubrežne funkcije. Procjenjuje se da je učestalost progresivne bubrežne bolesti kod osoba mlađih od 18 godina 6 do 8 djece/1 000 000 stanovnika na jednu godinu. Najčešći uzroci postupnog bubrežnog zatajenja kod pedijatrijske populacije su kongenitalne anomalije bubrega i mokraćnog sustava, cistična bolest bubrega te glomerularne bolesti. Zbog težine kliničke slike, ova djeca podvrgnuta su čestim hospitalizacijama uslijed različitih komplikacija, pretraga i zahvata, ali i dijalizi kada dođe do uznapredovale faze bubrežne bolesti te u konačnici transplantaciji.
Stoga, u radu je prikazano kvalitativno istraživanje čiji je cilj bio dobiti uvid u iskustva majki djece s kroničnim bolestima bubrega o značaju učestalih hospitalizacija na razvoj njihove djece, prilagodbama bolničkog okruženja na individualne potrebe i teškoće djece, komunikacije s medicinskim osobljem te iskustva vezana za odvajanja majke i djeteta prilikom hospitalizacija kao i njihova promišljanja o potrebnim promjenama u sustavu zdravstva na odjelima pedijatrije. Istraživanje se provodilo putem polustrukturiranog intervjua sa šest majki s područja Republike Hrvatske. Iznjedrili su se značajni odgovori vezani uz opisanu problematiku koji mogu doprinijeti kvalitetnijoj sustavnoj skrbi djece, ali i majki te u konačnici cijele obitelji

Abstract (english)

Hospitalizations of children can represent significant stress and shock with intense feelings of sadness, fear, but also anger due to separation from family and everyday environment. Depending on the age, children react differently to staying in the hospital and to the new situation in general related to their health condition. Some children may experience hospitalization as punishment and develop a sense of guilt by thinking that they have contributed to it through their behavior and actions. Because of all of all the above, many preventive measures and adjustments are needed in the pediatric departments in order for the child to have a better and more comfortable stay in the hospital, as much as possible given the diagnosis and condition.
Chronic kidney disease is a term that refers to the gradual and irreversible loss of kidney function. The incidence of progressive kidney disease in people under the age of 18 is estimated to be 6 to 8 children / 1,000,000 population per year. The most common causes of progressive renal failure in the pediatric population are congenital anomalies of the kidneys and urinary system, cystic kidney disease and glomerular disease. Due to the severity of the clinical picture, these children are subjected to frequent hospitalizations due to various complications, examinations and procedures, but also dialysis when there is an advanced stage of kidney disease and transplantation.
Therefore, the thesis presents a qualitative study aimed at gaining insight into the experiences of mothers of children with chronic kidney disease on the significance of frequent hospitalizations for their children's development, adapting the hospital environment to individual needs and difficulties of children, communication with medical staff and experiences related to the separation of mother and child during hospitalizations as well as their reflections on the necessary changes in the health care system in pediatric wards. The research was conducted through a semi-structured interview with six mothers from the Republic of Croatia. Significant answers related to the described problems have emerged, which can contribute to better quality systematic care for children, but also for mothers and, ultimately, for the whole family

• Keywords: hospitalizacije kod djece; kronične bolesti bubrega; iskustva majki
• Keywords (english): hospitalizations in children; chronic kidney disease; mothers' experiences
• Language: croatian
• URN:NBN: urn:nbn:hr:158:694842
• Study programme: Title: Graduate study of Educational Rehabilitation; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra edukacijske rehabilitacije (magistar/magistra edukacijske rehabilitacije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2022-08-31 09:08:24