Stres kod braće i sestara djece oboljele od raka

master's thesis

• Title (english): Stress in siblings of children with cancer
• Author: Sanja Pažin
• Mentor: Damir Miholić (mentor)
• Committee member: Damir Miholić (predsjednik povjerenstva)
• Committee member: Natalija Lisak Šegota (član povjerenstva)
• Committee member: Renata Pinjatela (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2024-06-27, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Education/Rehabilitation Sciences

Abstract

Maligna oboljenja u djetinjstvu predstavljaju drugi najčešći uzrok smrti u dječjoj dobi. Osim što
utječe na dijete koje je oboljelo od malignog oboljenja, ova dijagnoza utječe na cijelu obitelj, na
obiteljsku dinamiku, odnose, aktivnosti i slično.
Tema utjecaja malignog oboljenja na braću i sestre djece koja se liječe nije dovoljno istražena.
Ipak, pojavljuje se sve više radova na ovu temu upravo iz razloga što je sve više prepoznat utjecaj
koji ova dijagnoza ima i na ove članove najuže obitelji.
Maligno oboljenje i situacija do koje ono dovodi cijelu obitelj uzrokuje brojne teške emocije kod
braće i sestara poput krivnje, ljutnje, straha, ali i ljubomore jer često imaju osjećaj da roditelji, a i
drugi članovi obitelji i društva u kojem se nalaze više brinu o njihovom bratu ili sestri koji se liječe,
a njihove osjećaje ne uzimaju u obzir. Također, problem je i u promjeni obiteljske dinamike koja
itekako utječe na braću i sestre. Odvojenost od brata ili sestre koji se liječi, ali i od roditelja koji
sada provodi vrijeme u bolnici s njihovim bratom ili sestrom dovodi do osjećaja odbačenosti, ali i
usamljenosti.
U ovom radu ispitani su izazovi s kojima se susreću braća i sestre djece oboljele od raka te pojava
stresa kod njih zbog tih izazova. Rad je napisan i kroz kvantitativno istraživanje provedeno uz
pomoć Skale stresa kod braće i sestara djece oboljele od raka. U kvantitativnom dijelu istraživanja
sudjelovalo je 38 braće i sestara u dobi od 8 do 17 godina. Pokazalo se da braća i sestre izražavaju
snažne stavove kada se radi o načinu nošenja sa novonastalom situacijom te osjećajima vezanim
uz cijelu situaciju i njihovog brata ili sestru koji se liječi. Pokazalo se također da djevojčice
izražavaju snažnije stavove u odnosu na dječake. U istraživanju je korištena i kvalitativna
metodologija kroz polustrukturirani intervju s mladićem čija je sestra u djetinjstvu preboljela rak.
Došlo se do konkretnih odgovora vezanih uz ovu problematiku koji mogu doprinijeti organiziranju
kvalitetne podrške za braću i sestre djece oboljele od raka.

Abstract (english)

Childhood malignancies represent the second most common cause of childhood death. In addition
to affecting a child suffering from a malignant disease, this diagnosis affects the whole family,
family dynamics, relationships, activities, etc.
The topic of the impact of malignant disease on siblings of children with cancer has not been
sufficiently investigated. Nevertheless, more and more papers are appearing on this topic precisely
because the impact that this diagnosis has on these members of the closest family is increasingly
recognized.
Malignant disease and the situation that it leads to causes many difficult emotions in siblings such
as guilt, anger, fear, but also jealousy because they often have the feeling that parents, and other
members of the family and society, care more about their brother or sister with cancer, and their
feelings are not taken into account. Also, the problem is the change in family dynamics that affects
siblings. Separation from the brother or sister with cancer, but also from the parent who now spends
time in the hospital with their brother or sister leads to feelings of rejection, but also loneliness.
This thesis examines the challenges faced by siblings of children with cancer and the occurrence
of stress in them due to these challenges. The thesis was written both through quantitative research
conducted with the help of the Stress Scale in siblings of children with cancer. In the quantitative
part of the study, 38 siblings aged 8 to 17 participated. It has been shown that siblings express
strong attitudes when it comes to how to deal with the new situation and feelings related to the
whole situation and their brother or sister who is being treated. It has also been shown that girls
express stronger attitudes compared to boys. Qualitative methodology was also used in the
research through a semi-structured interview with a young man whose sister had gotten over cancer
in childhood. Significant answers related to this issue emerged that can contribute to organizing
quality support for siblings of children with cancer.

• Keywords: maligna oboljenja; braća i sestre djece oboljele od raka; stres
• Keywords (english): malignant disease; siblings of children with cancer; stress
• Language: croatian
• URN:NBN: urn:nbn:hr:158:421262
• Study programme: Title: University graduate study of Educational Rehabilitation; Study programme type: university; Study level: graduate; Academic / professional title: sveučilišni magistar/magistra edukacijske rehabilitacije (sveučilišni magistar/magistra edukacijske rehabilitacije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2024-07-15 09:05:20