Izazovi osoba s dijagnozom poremećaja iz spektra autizma tijekom zdravstvenih pregleda

master's thesis

• Title (english): Challenges of autistic children and adults during health examinations
• Author: Nikolina Šrajbek
• Mentor: Jasmina Stošić (mentor)
• Committee member: Jasmina Stošić (predsjednik povjerenstva)
• Committee member: Ana Wagner Jakab (član povjerenstva)
• Committee member: Matea Begić Alić (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2024-07-08, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Education/Rehabilitation Sciences

Abstract

Odrasle autistične osobe pod povećanim su rizikom za prateće zdravstvene probleme, a u posljednje se vrijeme bilježi i povećana stopa pokušaja samoubojstava. Uz sve to, suočavaju se i s mnogim izazovima tijekom zdravstvenih pregleda, a nužno je naglasiti kako ovoj populaciji nisu pružene preventivne zdravstvene usluge. Djeca s autizmom od najranijih dana proživljavaju neugodna iskustva u bolničkom okruženju. Prema dosadašnjim istraživanjima, senzorni i komunikacijski izazovi predstavljaju najveće probleme u zdravstvenim ustanovama za obje populacije. Rad daje prikaz dosadašnjih spoznaja u ovom području diljem svijeta te izdvaja razumne prilagodbe koje bi se minimalno trebale primjenjivati za ugodnija iskustva u zdravstvenim ustanovama.
Ovo je istraživanje željelo utvrditi najčešće izazove s kojima se susreću osobe s poremećajem iz spektra autizma tijekom zdravstvenih pregleda te identificirati potrebne prilagodbe za iste u sustavu zdravstva. 102 sudionika odgovorilo je na anketni upitnik nakon čega je napravljena kvantitativna analiza podataka na deskriptivnoj razini. Istraživanje je obuhvatilo roditelje djece s autizmom i autistične odrasle iz cijele Hrvatske. Rezultati prikazuju zdravstvene preglede tijekom kojih obje skupine doživljavaju najviše teškoća, kao i općenite te senzorne teškoće koje uzrokuju ta ista neugodna iskustva. Objedinjene su i potrebne prilagodbe u zdravstvenom sustavu iz iskustva roditelja djece s autizmom i autističnih odraslih za koje je najviše sudionika izrazilo najveći stupanj slaganja u područjima organizacije pregleda, strukturi i predvidljivosti, komunikaciji i senzoričkim teškoćama. Prilagodbe služe kao referentan okvir za promjene u Hrvatskoj usmjerene na poboljšanje dostupnosti zdravstvenih usluga za djecu s autizmom i autistične odrasle.

Abstract (english)

Autistic adults are at increased risk for accompanying health problems and recently there has been an increased rate of suicide attempts in this population. In addition, autistic adults also face many challenges during health examinations. It is necessary to emphasize that this population is not provided with preventive health services. From the earliest days, children with autism experience unpleasant experiences in the hospital environment. According to previous researches, sensory and communication challenges represent the biggest problems in healthcare institutions for both populations. This paper provides an overview of current knowledge in this area around the world and highlights reasonable adjustments that should minimally be applied for more pleasant experiences in healthcare institutions.
This research wanted to determine the most common challenges faced by people with autism spectrum disorder during health examinations and to identify the necessary adjustments for them in the health care system. 102 respondents answered the survey questionnaire, after which a quantitative data analysis on a descriptive level was made. The research included parents of children with autism and autistic adults from all over Croatia. The results show the health examinations during which both groups experience the most difficulties, as well as general and sensory difficulties that cause these same unpleasant experiences. Necessary adjustments in the health care system from the experience of parents of children with autism and autistic adults, for which the majority of respondents expressed the highest degree of agreement in the areas of examination organization, structure and predictability, communication and sensory difficulties, were also consolidated. The adaptations serve as a foundation for changes in Croatia aimed at improving the availability of health services for children with autism and autistic adults.

• Keywords: zdravstveni pregled; izazovi; djeca; odrasli; autizam; prilagodbe
• Keywords (english): health examination; challenges; children; adults; autism; adaptations
• Language: croatian
• URN:NBN: urn:nbn:hr:158:145008
• Study programme: Title: University graduate study of Educational Rehabilitation; Study programme type: university; Study level: graduate; Academic / professional title: sveučilišni magistar/magistra edukacijske rehabilitacije (sveučilišni magistar/magistra edukacijske rehabilitacije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2024-07-16 11:23:34