Djeca sa složenim komunikacijskim potrebama u kontekstu zdravstvenog sustava

master's thesis

• Title (english): Children with Complex Communication Needs in the Context of the Health System
• Author: Kristina Selić
• Mentor: Jasmina Ivšac Pavliša (mentor)
• Committee member: Jasmina Ivšac Pavliša (predsjednik povjerenstva)
• Committee member: Sanja Šimleša (član povjerenstva)
• Committee member: Klara Popčević (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2024-09-13, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Speech Therapy

Abstract

Kod djece sa složenim komunikacijskim potrebama (SKP) uspostavljanje učinkovite komunikacije nerijetko predstavlja veliki izazov. Prilikom pružanja zdravstvene skrbi to može negativno utjecati na donošenje kliničkih odluka, odabir tretmana te izazvati frustraciju svih osoba koje su u interakciji. Očekuje se da pedijatri kao stručnjaci koji kontinuirano prate dijete i kojima će se roditelji prvi obratiti za pomoć, imaju priliku steći dodatna znanja i strategije kako bi pružanje svojih usluga prilagodili specifičnim komunikacijskim potrebama ove djece. Ipak, istraživanja pokazuju da se mnogi osjećaju nedovoljno kompetentno i da okolinski čimbenici samog zdravstvenog sustava to dodatno otežavaju. Kao strategiju za prevladavanje ovih prepreka mnogi navode suradnju s drugim stručnjacima i uporabu potpomognute komunikacije koja može pružiti potrebnu podršku u komunikaciji.
Iako sve više literature ukazuje na porast broja djece sa složenim komunikacijskim potrebama, važnosti korištenja potpomognute komunikacije u zdravstvu te suradnje pedijatara i logopeda, u Hrvatskoj nema mnogo sličnih istraživanja. Cilj rada je istražiti iskustva hrvatskih pedijatara u radu s djecom sa složenim komunikacijskim potrebama i metodama potpomognute komunikacije. Uzorak čini ukupno 38 pedijatara te su analizirane razlike s obzirom na staž i postojanje zaposlenog logopeda u ustanovi rada.
Iako su pedijatri svjesni važnosti komunikacije s ovom djecom, navode da im je vremenski pritisak i nedostatak specifičnih znanja o ovom području najveći izazov u radu. Veliki dio njih upoznat je s različitim komunikacijskim pomagalima, no samo nekolicina ih je i sama koristila. Pokazalo se da pedijatri s više godina staža doživljavaju rad s djecom sa SKP-om kao veći izazov u odnosu na one s manje godina staža. U ostalim ispitanim varijablama nisu pronađene razlike s obzirom na staž kao ni postojanje zaposlenog logopeda.
Pedijatri smatraju kako su im potrebne edukacije u području komunikacijskih teškoća te potpomognute komunikacije, ali ukazuju i na probleme unutar samog sustava koji bi otežali primjenu naučenog. Suradnjom različitih stručnjaka, osiguravanjem potrebnih resursa i primjenom određenih strategija poboljšala bi se kvaliteta pruženih usluga djeci sa SKP-om, ali i osjećaj zadovoljstva s radom među pedijatrima.

Abstract (english)

Effective communication is often disrupted in children with complex communication needs. In healthcare provision, this can negatively impact clinical decision-making, treatment choices, and cause frustration among individuals. Pediatricians, as specialists who consistently monitor the child and are the first point of contact for parents seeking help, need additional knowledge and strategies to tailor their services to the specific communication needs of these children. However, research shows that many feel insufficiently competent and that environmental factors within the healthcare system further complicate the situation. As a strategy to overcome these obstacles, many cite collaboration with other professionals and the use of augmentative and alternative communication (AAC) to provide necessary communication support.
Although increasing literature highlights the growing number of children with complex communication needs, the importance of using AAC in healthcare, and the collaboration between pediatricians and speech therapists, similar research in Croatia is scarce. This study aimed to explore the experiences of Croatian pediatricians in working with children with complex communication needs and methods of AAC. A total of 38 pediatricians were surveyed, and differences were analyzed based on years of experience and the presence of a speech therapist within their practice.
Despite being aware of the importance of communication with these children, pediatricians cite time pressure and a lack of specific knowledge in this area as their biggest challenges. Many are familiar with various communication aids, but only a few have personally used them. It was found that pediatricians with more years of experience perceive working with children with complex communication needs as more challenging compared to those with fewer years of experience. No differences were found in other examined variables based on years of experience or the presence of a speech therapist. Pediatricians believe they need training in communication disorders and AAC, but also point out systemic issues that would hinder the application of what they have learned. Through collaboration with various professionals, ensuring necessary resources, and applying specific strategies, the quality of services provided to children with complex communication needs would improve, as would the job satisfaction among pediatricians.

• Keywords: složene komunikacijske potrebe; potpomognuta komunikacija; pedijatri
• Keywords (english): complex communication needs; augmentative and alternative communication; pediatricians
• Language: croatian
• URN:NBN: urn:nbn:hr:158:074163
• Study programme: Title: University graduate study of Speech and Language Pathology; Study programme type: university; Study level: graduate; Academic / professional title: sveučilišni magistar/magistra logopedije (sveučilišni magistar/magistra logopedije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2024-10-14 08:59:50