Otpornost obitelji djece s poremećajem iz spektra autizma

master's thesis

• Title (english): Family resilience of children with an autism spectrum disorder
• Author: Valentina Krsnik
• Mentor: Ana Wagner Jakab (mentor)
• Mentor: Jasmina Stošić (mentor)
• Committee member: Ana Wagner Jakab (predsjednik povjerenstva)
• Committee member: Jasmina Stošić (član povjerenstva)
• Committee member: Jasmina Frey Škrinjar (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2018-09-11, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Education/Rehabilitation Sciences

Abstract

Cilj ovog diplomskog rada je dati pregled istraţivanja na temu „Otpornost obitelji djece s poremećajem iz spektra autizma“. S obzirom na relativno novi pojam koncepta obiteljske otpornosti koji se pojavljuje u literaturi, ne postoji mnogo radova na tu temu. Otpornost obitelji odnosi se na aktivni proces izdrţljivosti, samoupravljanja i odgovora na krize i izazove (Walsh, 2006). Koncept otpornosti je vaţan kod obitelji djece s poremećajem iz spektra autizma jer su te obitelji suočene s brojnim izazovima i stresorima od trenutka postavljanja dijagnoze pa kroz različita ţivotna razdoblja. Poremećaj iz spektra autizma pogaĎa obitelj drastičnije od mnogih drugih razvojnih i psihičkih poremećaja (Bayat i Schuntermann, 2013). U ovaj pregled je uključeno 17 istraţivanja od kojih su sva provoĎena u stranim drţavama (Autralija, SAD, Juţna Afrika, Kanada…), a sudionici istraţivanja su roditelji, skrbnici, bake i djedovi ili svi članovi obitelji djeteta s poremećajem iz spektra autizma. Rezultati su podijeljeni u tri kategorije: Otpornost obitelji (zaštitni čimbenici/čimbenici otpornosti i rizični čimbenici), organizacija ţivota i financijski čimbenici te utjecaj na psihoemocionalno stanje roditelja/skrbnika. Kroz posebno poglavlje navedene su neke implikacije za praksu, odnosno intervencije i terapije koje su prijeko potrebne obiteljima djece s poremećajem iz spektra autizma, dok su u zaključku sumirani rezultati istraţivanja.

Abstract (english)

The aim of this graduate thesis is to present a researches on the topic „Family resilience of children with an autism spectrum disorder“. Given the relatively new concept of the family resilience that appears in the literature, there is not many work on this subject. Family resilience is an active process of endurance, self-righting and growth responses to crises and challenges (Walsh, 2006). The concept of resilience is very important in the families of children with an autism spectrum disorder because this families are faced with many challenges and stressors from the moment of diagnosis and through diffrent life cycles. The autism spectrum disorder affects family more drastically than other developmental and psychic disorders (Bayat i Schuntermann, 2013). In this review is included 17 researches and all of them were conducted in foreign countries (Australija, USA, South Africa, Canada…), participants are parents, caregivers, grandparents or all members of the family of child with an autism spectrum disorder. The results are divided into three categories and their subcategories: family resilience (protective factors/resilience factors and risk factors), life organization and financial factors and influence on the psycho-emotional state of parents/caregivers. A special chapter outlines some implications for practice, interventions and therapies that are needed in families of children with an autism spectrum disorder, while conslusion sums up the results of the researches.

• Keywords: obitelj; otpornost; otpornost obitelji; poremećaj iz spektra autizma
• Keywords (english): family; resilience; family resilience; autism spectrum disorder
• Language: croatian
• URN:NBN: urn:nbn:hr:158:573695
• Study programme: Title: Educational Rehabilitation; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra edukacijske rehabilitacije (magistar/magistra edukacijske rehabilitacije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2018-11-16 12:36:57