Braća i sestre djeteta s malignim oboljenjem

master's thesis

• Title (english): Siblings of a Child with Malignant Disease
• Author: Martina Sonički
• Mentor: Damir Miholić (mentor)
• Committee member: Damir Miholić (predsjednik povjerenstva)
• Committee member: Renata Martinec (član povjerenstva)
• Committee member: Ana Wagner Jakab (član povjerenstva)
• Granter: University of Zagreb; Faculty of Education and Rehabilitation Sciences; Zagreb
• Defense date and country: 2019-09-27, Croatia
• Scientific / art field, discipline and subdiscipline: SOCIAL SCIENCES; Education/Rehabilitation Sciences

Abstract

Broj djece s dijagnozom malignog oboljenja kroz proteklih je nekoliko desetljeća u značajnom porastu. Dijagnoza malignog oboljenja ne utječe samo oboljelo dijete, nego i na cjelokupnu obitelj. Podsustav braće i sestara niz je godina bio zanemaren i nije mu se pridavala značajna pozornost. No, istraživanjima se utvrdilo da maligno oboljenje djeteta ima značajan utjecaj na njegovu braću i sestre – od mijenjanja obiteljske dinamike i funkcioniranja do osobnih promjena u smislu načina suočavanja i doživljavanja emocija. Kvaliteta života braće i sestara djeteta s malignim oboljenjem može biti značajno ugrožena ukoliko se djetetove potrebe i osjećaji zanemare.
Ovaj rad želi dati potencijalne odgovore na pitanja koja uključuju suočavanje s dijagnozom ovisno o razvojnoj dobi, pozitivne i negativne posljedice malignog oboljenja, kvalitetu životu i konačno smjernice koje su bitne za svakodnevni život i rad s braćom i sestrama djeteta s malignim oboljenjem.

Abstract (english)

The number of children diagnosed with malignancy has increased significantly over the past few decades. The diagnosis of malignancy affects not only the diseased child but also the entire family. The siblings' subsystem had been neglected for many years and had not received significant attention. But research has found that a child's malignancy has a significant impact on his siblings - from changing family dynamics and functioning to personal changes in terms of coping and experiencing emotions. The quality of life of a sibling of a child with malignancy can be significantly compromised if the child's needs and feelings are neglected.
The purpose of this paper is to provide potential answers to questions that include coping with a diagnosis of developmental age, the positive and negative consequences of malignancy, quality of life, and finally guidelines that are essential to the daily life and work with siblings of a child with malignancy.

• Keywords: maligno oboljenje; obitelj djece s malignim oboljenjem; braća i sestre djeteta s malignim oboljenjem
• Keywords (english): malignant disease; family of children with malignant disease; siblings of a child with malignant disease
• Language: croatian
• URN:NBN: urn:nbn:hr:158:061499
• Study programme: Title: Graduate study of Educational Rehabilitation; Study programme type: university; Study level: graduate; Academic / professional title: magistar/magistra edukacijske rehabilitacije (magistar/magistra edukacijske rehabilitacije)
• Type of resource: Text
• File origin: Born digital
• Access conditions: Open access
• Created on: 2019-10-28 12:08:23